In 2006, Charlotte doctors diagnosed Taylor King, then 7, with CLN1, also known as infantile Batten disease. CLN1 is a fatal brain disease with no known cure.
Doctors said Taylor couldn’t be saved, but her family and friends refused to accept a life without hope. Months after the diagnosis, a small but dedicated team founded Taylor’s Tale. They set out to save not only Taylor’s life, but also the lives of other children with Batten disease and, later, millions fighting one of 7,000 rare diseases.
Today, Taylor’s Tale supports the development and implementation of innovative treatments, practical programs and beneficial public policies to improve the quality of life for rare disease patients and their families.
Who was Taylor King?
Me I have a tailor tale oh will send in my picture to ma'am Stella when and if I ever rock the gown. #Hot Mum# Reply Delete. Nuella 30 March 2019 at. A Tailor's Tale An Exclusive Shopping Platform, Showcasing a Highly Curated Collection of the Budding Indian Fashion Designers.
Taylor started life as a bright, happy, mostly healthy little girl. She loved dresses and anything purple or pink. She wanted to be a pop star or a veterinarian. She outpaced her classmates in school. The tragic effects of Batten disease seemed impossible.
Even as Batten disease tightened its grip, Taylor fought back. She learned braille. She memorized the halls of her school. She ran two 5K races with a guide. She joined her friends in school talent shows.
But Batten disease is ugly and real. Over the course of more than a decade, it robbed Taylor of her vision, her speech, her mobility and her ability to swallow food. On September 26, 2018, it won the battle for her life.
What is her legacy?
Taylor never quit while she was alive, and neither will her team.
Today, we are actively engaged in partnerships to advance rare disease research. A gene therapy clinical trial for children like Taylor, sponsored by Abeona Therapeutics, is anticipated to begin in 2019 thanks to work we helped to start and fund at the University of North Carolina. One million rare disease patients in North Carolina stand to benefit from Taylor’s Law, signed in 2015 to establish the nation’s first rare disease advisory council. We are working with state and national leaders to foster real change for the rare disease community.
We couldn’t save Taylor’s life. But we are building a better future for millions like her. We may have lost the battle for Taylor, but we are winning the war for so many others.
This is her legacy, and ours.
| Author | Beatrix Potter |
|---|---|
| Illustrator | Beatrix Potter |
| Country | England, United Kingdom |
| Language | English |
| Genre | Children's literature |
| Publisher | Frederick Warne & Co. |
Publication date | October 1903 |
| Media type | Print (hardcover) KO |
| OCLC | 884366 |
| Preceded by | The Tale of Squirrel Nutkin |
| Followed by | The Tale of Benjamin Bunny |
The Tailor of Gloucester is a children's book written and illustrated by Beatrix Potter, privately printed by the author in 1902, and published in a trade edition by Frederick Warne & Co. in October 1903. The story is about a tailor whose work on a waistcoat is finished by the grateful mice he rescues from his cat and was based on a real world incident involving a tailor and his assistants. For years, Potter declared that of all her books it was her personal favourite.[1]
Plot[edit]
Games Like Tailor Tales
A tailor in Gloucester sends his cat Simpkin to buy food and a twist of cherry-coloured silk to complete a waistcoat commissioned by the mayor for his wedding on Christmas morning. Whilst Simpkin is gone, the tailor finds mice the cat has imprisoned under teacups. The mice are released and scamper away. When Simpkin returns and finds his mice gone, he hides the twist in anger.
The tailor falls ill and is unable to complete the waistcoat, but, upon returning to his shop, he is surprised to find the waistcoat finished. The work has been done by the grateful mice. However, one buttonhole remains unfinished because there was 'no more twist!' Simpkin gives the tailor the twist to complete the work and the success of the waistcoat makes the tailor's fortune.
Composition[edit]
In the summer of 1901, Potter was working on The Tale of Squirrel Nutkin, but took time to develop a tale about a poor tailor she heard in the Gloucestershire home of her cousin Caroline Hutton probably in 1897. The tale was finished by Christmas 1901, and given as a Christmas present to ten-year-old Freda Moore, the daughter of her former governess.[2][3]
The tale was based on a real world incident involving John Prichard (1877–1934),[4] a Gloucester tailor commissioned to make a suit for the new mayor. He returned to his shop on a Monday morning to find the suit completed except for one buttonhole. A note attached read, 'No more twist'. His assistants had finished the coat in the night, but Prichard encouraged a fiction that fairies had done the work and the incident became a local legend.[5] Although Prichard was a contemporary of Potter's (he was about eleven years her junior and in his twenties when the incident took place), Potter's tailor is shown as 'a little old man in spectacles, with a pinched face, old crooked fingers,' and the action of The Tailor of Gloucester takes place in the 18th century.
Potter sketched the Gloucester street where the tailor's shop stood as well as cottage interiors, crockery, and furniture. The son of Hutton's coachman posed as a model for the tailor. In Chelsea, Potter was allowed to sketch the interior of a tailor's shop to whose proprietor she would later send a copy.[4][6] She visited the costume department at the South Kensington Museum to refine her illustrations of 18th century dress.[7]
Potter later borrowed Freda Moore's gift copy, revised the work, and privately printed the tale in December 1902.[8][9] She marketed the book among family and friends and sent a copy to her publisher who made numerous cuts in both text and illustrations for the trade edition, chiefly among the tale's many nursery rhymes.[3]
Publication history[edit]
Tailor Tales Neil
Squirrel Nutkin was published in August 1903 and Tailor in October 1903.[1] Both were published in deluxe editions bound in a flowered chintz of scattered pansies the author selected. The familiar illustrated endpapers of Potter characters in a chain bordering the edges of the page were introduced in both books against Potter's better judgement. However, Warne was delighted with the commercial potential of the endpapers because new characters hinting at future titles could be worked into the design at any time.
Reception[edit]
Potter gave a copy of the book to her Chelsea tailor who, in turn, displayed it to a representative of the trade journal, The Tailor & Cutter. The journal's review appeared on Christmas Eve 1903:
[...] we think it is by far the prettiest story connected with tailoring we have ever read, and as it is full of that spirit of Peace on Earth, Goodwill to Men, we are not ashamed to confess that it brought the moisture to our eyes, as well as the smile to our face. It is got up in choicest style and illustrated by twenty-seven of the prettiest pictures it is possible to imagine.[10]
Adaptations[edit]
In 1988, Rabbit Ears Productions produced a storyteller version with narration by Meryl Streep, drawings by David Jorgensen and music by The Chieftains.
Ian Holm played the tailor in a live-action TV adaptation in 1989 which included Thora Hird and Jude Law in an early part as the Mayor's stableboy.
In 1993, the tale was adapted to animation for the BBCanthology series, The World of Peter Rabbit and Friends. Derek Griffiths was the voice of Simpkin and Ian Holm the tailor. The episode was dedicated to Dianne Jackson who died of cancer on New Year's Eve 1992.
Footnotes[edit]
- ^ abLear 162-4
- ^Lear 156-7
- ^ abTaylor 109
- ^ abHallinan, Camilla (2002). The Ultimate Peter Rabbit. London: Dorling Kindersley. ISBN978-0-7513-3746-4.
- ^Taylor 108
- ^Lear 157-8
- ^Lear 162-3
- ^Taylor 108-9
- ^Lear 158
- ^Quoted in Lear 165
Works cited[edit]
Tailor Tales Patreon
- Lane, Margaret (2001) [1946]. The Tale of Beatrix Potter. London: Frederick Warne. ISBN978-0-7232-4676-3.
- Lear, Linda (2007). Beatrix Potter: A Life in Nature. New York: St. Martin's Griffin. ISBN978-0-312-37796-0.
- Mackey, Margaret, ed. (2002). Beatrix Potter's 'Peter Rabbit': A Children's Classic at 100. Children's Literature Association Centennial Studies. Lanham, Maryland, and London: The Children's Literature Association and The Scarecrow Press, Inc. ISBN0-8108-4197-5.
- Taylor, Susan; Whalley, Joyce Irene; Hobbs, Anne Stevenson; Battrick, Elizabeth M. (1987). Beatrix Potter 1866–1943: The Artist and Her World. London: F. Warne & Co. and The National Trust. ISBN0-7232-3561-9.
- Bibliography
- Kutzer, M. Daphne (2003). Beatrix Potter: Writing in Code. London and New York: Routledge. ISBN0-415-94352-3.
External links[edit]
- The full text of The Tailor of Gloucester at Wikisource
- Media related to The Tailor of Gloucester at Wikimedia Commons
Tailor Tales Help
- The Tailor of Gloucester at Project Gutenberg
- The Tailor of Gloucester at Internet Archive
- The Tailor of Gloucester public domain audiobook at LibriVox
Tailor Tales Caine